The 11th May was my last update after we had secured access to Osimertinib (Tagrisso) with the assistance of Professor Ben Solomon from Peter Mac. On the 14th May, we met Assoc Professor Gary Richardson, who indicated that without a significant response to Tagrisso, Cassy would have ~1 month to live. Telling our children that prognosis was the hardest thing we have ever done, it shocked and shattered them, they cried uncontrollably. It was just terrible, you actually hurt in your chest. We just held them. Cassy, as always, remained defiant and was so strong. 16th May we did an early birthday celebration for Kiara and went to LEGO Discovery Centre at Chadstone. We had an amazing time, topping out with Kiara getting the ‘Disney’ Castle as her 7th Birthday gift. She was so excited!!! We had Mexican at Fonda... to which Harper created her Parody “lightning and the Fonda” which we’ve been hearing ever since! We remained hopeful and Cassy commenced the Tagrisso, howev
Hi All, Just a quick update, I spoke to Prof Ben Solomon yesterday re our options / access to Osimertinib (Tagrisso). He suggested this was an appropriate course of action and that he would investigate whether we could get access for Cassy. He suggested that it may take a little time, however called me back within the hour to confirm the planets had aligned and AstraZeneca had approved access and that the medicine could be dispensed Friday evening. Ben drove to Prahan and personally delivered the Osimertinib last night. Cassy has commenced this treatment as of last night and will take one tablet each day. Thank you so much Ben for helping us and letting us explore this option for our beautiful Cassy. 🙏🙏🙏 Keep fighting babe you are amazing, you inspire us all! 🦁👠👊🏾👊🏻😘❤️